Ascertainment of early onset eating disorders: a pilot for developing a national child psychiatric surveillance system
R.M. Lynn,
R.M. Viner, D.E. Nicholls,
R.M. Lynn
British Paediatric Surveillance Unit, Royal College of Paediatrics and Child Health, 5-11 Theobalds Road, London WC1X 8SH, UK. E-mail: [email protected]
UCL Institute of Child Health, London, UK
Search for more papers by this authorD.E. Nicholls
Great Ormond Street Hospital for Children, London, UK
Search for more papers by this authorR.M. Lynn,
R.M. Viner, D.E. Nicholls,
R.M. Lynn
British Paediatric Surveillance Unit, Royal College of Paediatrics and Child Health, 5-11 Theobalds Road, London WC1X 8SH, UK. E-mail: [email protected]
UCL Institute of Child Health, London, UK
Search for more papers by this authorD.E. Nicholls
Great Ormond Street Hospital for Children, London, UK
Search for more papers by this authorAbstract
Background: A Child & Adolescent Psychiatric Surveillance System was established as part of a British Paediatric Surveillance Unit study of early onset eating disorders (EOED).
Method: A study of EOED presenting to paediatricians was undertaken through the BPSU over 15 months in 2005–06.
Results: Monthly report cards compliance was 83%, identifying 208 EOED cases. On evaluation, 99% of psychiatrists responding supported the need for surveillance and 95% would continue to contribute.
Conclusions: The findings of this pilot study suggest that a monthly surveillance of rare conditions in child and adolescent psychiatry is feasible and enhances ascertainment.
References
- Cockerell, O.C., Gupta, S., Catchpole, M., Sander, J. W., & Shorvon, S. D. (1995). The British Neurological Surveillance Unit: a nation-wide scheme for the ascertainment of rare neurological disorders. Neuroepidemiology, 14, 182–187.
- Department of Health (2010). On the state of the public health: 2009 Annual Report of the Chief Medical Officer. Department of Health, London, England. http://www.dh.gov.uk/prod_consum_dh/groups/dh_digitalassets/@dh/@en/@ps/documents/digitalasset/dh_114012.pdf. Accessed August 2010.
- Elliott, E., Nicoll, A., Lynn, R., Marchessault, V., Hirasing, R., & (INoPSU Secretariat) on behalf of the INoPSU members. (2001). An international network of Paediatric Surveillance Units: A new ear in monitoring uncommon diseases of childhood. Paediatric Child Health, 6, 251–260.
- European Commission. Regulation (EC) No 141/2000 of the European Parliament and of the Council of 16 December 1999 on Orphan Medicinal Products http://eurlex.europa.eu/LexUriServ/LexUriServ.do?uri=OJ:L:2000:018:0001:0005:EN:PDF. Accessed November 2010.
- Foot, B., Stanford, M., Rahi, J., Thompson, J., & on behalf of the British Ophthalmological Surveillance Unit Steering Committee (2003). The British Ophthalmological Surveillance Unit: An evaluation of the first 3 years. Eye, 17, 9–15.
- Ford, T., Goodman, R., & Meltzer, H. (2003). The British Child and Adolescent Mental Health Survey 1999: The prevalence of DSM-IV disorders. Journal of the American Academy of Child Adolescent Psychiatry, 42, 1203–1211.
- Friend, H., Ihekweazu, C., Knowles, R. L., Mitchell, S., Michie, C., & Lynn, R. (2009). Evaluating the British Paediatric Surveillance Unit: Views from users of the system. Archives of Disease in Childhood, 94(Suppl-1), Abstract G246.
- Grenier, D., Elliott, E.J., Zurynski, Y., Rodrigues, P.R., Preece, M., Lynn, R, et al. (2007). Beyond counting cases: Public health impacts of National Paediatric Surveillance Units. Archives of Disease in Childhood, 92(6), 527–533.
- Grenier, D., Doherty, J., MacDonald, D., Scott, J., Delage, G., Medaglia, A., & Davis, MA. (2004). Canadian Paediatric Surveillance Program evaluation: An excellent report card. Paediatrics Child Health, 9, 379–38.
- Guillem, P., Cans, C., Robert-Gnansia, E., Ayme, S., & Jouk, P.S. (2008). Rare diseases in disabled children: An epidemiological survey. Archives of Disease in Childhood, 93, 115–118.
- He, S., Zurynski, Y., & Elliott, E. (2009). Evaluation of a national resource to identify and study rare diseases: The Australian Paediatric Surveillance Unit. Journal of Paediatrics and Child Health., 45, 498–504.
- Knowles, R L., Smith, A., Lynn, R., Rahi, J, & S on behalf of the British Paediatric Surveillance Unit (BPSU). (2006). Using multiple sources to improve and measure case ascertainment in surveillance studies: 20 years of the British Paediatric Surveillance Unit. Journal of Public Health Jun, 28, 157–65.
- Kozlowska, K. (2007). The developmental origins of conversion disorders. Clinical Child Psychology and Psychiatry, 12, 487–510.
- Laverty, A., Jaffé, A., & Cunningham, S. (2008). Establishment of a web-based registry for rare (orphan) pediatric lung diseases in the United Kingdom: The BPOLD registry. Pediatr Pulmono, 43, 451–6.
- Lynn, R., & Ross, E. (2007). The British Paediatric Surveillance Unit: The first 20 years. Archives of Disease in Childhood, 92, 744–745.
- Lynn, R. M., Riding, K., & McIntosh, N. (2010). The use of electronic reporting to aid surveillance of ADRs in children: A proof of concept study. Archives of Disease in Childhood, 95, 262–265.
- Madden, S., Morris, A., Zurynski, Y.A., Kohn, M., & Elliott, E.J. (2009). Burden of eating disorders in 5-13-year-old children in Australia. The Medical Journal of Australia, 190, 410–414.
- Migration Advisory Committee. (2009). Shortage Report, Medical posts in Child and Adolescent Psychiatry Consultants that are not training posts (SOC 2211) http://www.wrt.nhs.uk/index.php/component/search/CHILD%2BAND%2BADOLESCENT?ordering=&searchphrase=all. Accessed August 2010.
- NICE guidelines (2004) Eating Disorders. Core interventions in the treatment and management of anorexia nervosa, bulimia nervosa, and related eating disorders. http://www.nice.org.uk/nicemedia/live/10932/29220/29220.pdf. Accessed May 2011.
- Nicholls, D., Lynn, R., & Viner, R. (2011). Childhood Eating Disorders: A British National Surveillance Study. British Journal of Psychiatry, 198, 295–301.
- Nicoll, A., Lynn, R., Rahi, J., Verity, C., & Haines, L. (2000). Public Health Outputs from the British Paediatric Surveillance Unit and similar clinician-based surveillance mechanisms. Journal of the Royal Society of Medicine, 80, 580–585.
- Nunn, K., Williams, K., & Ouvrier, R. (2002). The Australian Childhood Dementia Study. European Child Adolescent Psychiatry, 11, 63–70.
- Rare Disease UK (2011). Improving lives, optimising resources: A vision for the UK rare disease strategy. http://www.raredisease.org.uk/documents/RD-UK-Strategy-Report.pdf. Accessed May 2011.
- Schieppati, A., Henter, J.I., Daina, E., & Aperia, A. (2008). Why rare diseases are an important medical and social issue. Lancet, 371, 2039–2041.
- Stanford, M. R. (1997). A British ophthalmological surveillance unit. British Ophthalmological Surveillance Unit Steering Committee. British Journal of Ophthalmology, 81, 932–933.
- Verity, C., & Preece, M. (2002). Surveillance for rare disorders by the BPSU. The British Paediatric Surveillance Unit. Archives of Disease in Childhood, 87, 269–271.
